Project POTS
POTS patients in Canada are often misdiagnosed, dismissed or poorly managed. Physicians often refer these patients to other specialists rather than initiating care themselves. There is a need to equip physicians - particularly in primary care - to recognize, diagnose & manage POTS.
Background
POTS or Postural Orthostatic Tachycardia Syndrome is a chronic & disabling condition caused by a dysfunction of the autonomic nervous system. It primarily affects women of reproductive age and is underdiagnosed and under-recognized. It takes a POTS patient 2-12 years to get a diagnosis. Our study focuses on identifying and addressing the barriers to POTS diagnosis & care at the primary care level. We will engage primary care physicians to understand their experiences and co-create an intervention that improves the patient journey for POTS patients in Canada.
Project team
- Asnia Shah
- Mikhail Lobo
- Linette Penney
- Vedant Shukla