Executive Director | The ISAAC Foundation

Brief Bio:

Andrew McFadyen is the Executive Director of The Isaac Foundation. He founded The Isaac Foundation, a non-profit organization, to fund viable and innovative research projects that aim to find a cure for MPS VI, a rare and progressive disease of which his eldest son, Isaac, was diagnosed. The Isaac Foundation has funded numerous international research grants since 2006, totalling well over $1 million. McFadyen has led numerous advocacy efforts throughout North America, succeeding in having government decisions reversed. He is a member of the NYU Working Group on Compassionate Use and Preapproval Access (CUPA). He is an associate fellow of the GE2P2 Global Foundation and is a member of its Independent Bioethics Advisory Committee (IBAC). The Committee provides bioethics consultative services to commercial and other biopharma organizations on clinical trials, expanded access programs for investigational medicines and therapies, and in other areas. In 2016, McFadyen testified as an expert witness to the US Senate Committee of Homeland Security and Government Affairs regarding "Exploring A Right To Try For Terminally Ill Patients".

Research Interests:



"The TRP gives us an opportunity to hear from different discussants every week. It’s inspiring to interact with individuals who have so much experience to share, whether it’s their successes or failures.”

 - Nabilah Juma, Cohort 2017